Just an update: So far I have had mo ill effects of any kind but it could take up to 3 or 4 treatments to start working. I go for my next one in 2 weeks, then 4 weeks after that and then 8 weeks apart from then on. I will let you all know whether it works or not. I sure hope so though

Oh you poor thing, my heart goes out to you.

This is an amazing read: How Tara put Hidradenitis Suppurativa into remission with a paleo diet

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I really hope this drug works out for you. I'll have my fingers crossed for you.

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Dee, that was one of the first things I tried. I really appreciate the thought though!! Thank you all for your kind words and suggestions it means a lot. I am not sure if I'm seeing things cause I want so badly for this to work or if it is actually working but I believe it is. I have 3 open sores that are deep and nothing covering them and I think the remicade dried them out and is now helping heal them. I have also gotten no new ones. I will keep updating as the weeks go on but I think this may work.

So glad this seems to be working. I have a friend with this condition, it is truly awful, so you have my sympathy.

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I'm sorry to hear that Stella Has your friend found anything that worked for them?

I think she gave up on traditional medicines and just uses herbal remedies now, but hers wasn't very severe.

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That's such good news Denise, that you think it's helping - I haven't been able to stop thinking about you and how horrific that condition is since I read your post.

My son & I are plagued by MRSA (he got it from ICU when he was there for 3 months and I caught it from him) and until I read up on this condition I thought MRSA was about the worst thing that could ever happen to anyone, but how very, very wrong I was, it's an absolute walk in the park by comparison to what you must suffer. I sure hope to read it is sent packing & totally gonseky with this wonder drug!

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