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  #17  
Old 12-20-2012, 02:32 AM
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Originally Posted by AussieLass View Post
That's such good news Denise, that you think it's helping - I haven't been able to stop thinking about you and how horrific that condition is since I read your post.

My son & I are plagued by MRSA (he got it from ICU when he was there for 3 months and I caught it from him) and until I read up on this condition I thought MRSA was about the worst thing that could ever happen to anyone, but how very, very wrong I was, it's an absolute walk in the park by comparison to what you must suffer. I sure hope to read it is sent packing & totally gonseky with this wonder drug!
Thanks Dee, I hope it gets lost too - I won't know for sure though until about 3 months from now, so far its good news though. I will keep you updated! Sorry about you and your son as well
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  #18  
Old 12-20-2012, 02:54 AM
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So along with my million other health issues I have Hidradenitis Suppurativa (really gross and painful if you don't know what it is google will tell you, ill save you from the gory details) I have been battling it for 6 or 7 years now and it is in the worst possible stage (4). I have tried every recommended treatment out there besides remicade, it just all made it worse. My dermatologist has been trying to get me approved for remicade on a passionate basis because government medical will not cover it (At almost 30 grand a year, no one in my family can afford it). It has a 70% success rate, so I am hoping it will work. I get it intervienously every 8 weeks, after the first 3 doses which are done 2 weeks apart. I have been reading up on all the side effects and am extremely worried. I do not have much choice besides live off of morphine forever. So I need to try this. Has ANYONE had this medication or known someone who has? Hopefully this turns out okay I need relief from this
Hey I have the same thing. I cut out nightshades from my diet and it completely cleared up. I know a lot of woman who have cut out night shades and it helped them. Some women can just cut out potatoes and it will clear up. You should try it and see if it helps. You should try it for at least three months it takes time to get the food out of your system. Anyway, I have this issue as well as PCOS and I highly recommend the Paleo diet as I helps with symptoms.

I hope this gets better for you! It is so painful sometimes.
Nightshades = potatoes, peppers, eggplant and there is a list of stuff this includes cutting out spices that are made from nightshades like paprika ect.
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  #19  
Old 12-20-2012, 03:21 AM
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Originally Posted by Jmitchell&tiki View Post
Hey I have the same thing. I cut out nightshades from my diet and it completely cleared up. I know a lot of woman who have cut out night shades and it helped them. Some women can just cut out potatoes and it will clear up. You should try it and see if it helps. You should try it for at least three months it takes time to get the food out of your system. Anyway, I have this issue as well as PCOS and I highly recommend the Paleo diet as I helps with symptoms.

I hope this gets better for you! It is so painful sometimes.
Nightshades = potatoes, peppers, eggplant and there is a list of stuff this includes cutting out spices that are made from nightshades like paprika ect.
Oh wow! That is very interesting thank you! I also have PCOS but tried the Paleo diet and it didn't help for either. I am on metformin for that and it seems to be working well. Fingers crossed that it continues! I will ask my detmatoloigist about cutting out nightshades when i see him in a few weeks! Thank you very much for that suggestion though. I really really appreciate it
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  #20  
Old 12-20-2012, 12:53 PM
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Primalgirl Opens Up: Hidradenitis Suppurativa Part I | www.primalgirl.com


Primalgirl Opens Up: Hidradenitis Suppurativa Part 2 | www.primalgirl.com

I would suggest reading these two articles. They are amazing articles and helped me get rid of Hidradenitis Suppurativa. Doctors have almost no clue about Hidradenitis Suppurativa. They do not contribute it to a food sensitivity. But the testimonials of taking out nightshades is amazing! The Paleo diet helped me loose weight and it made me feel better... It didn't take away all my symptoms but it helped and you have to stay on it a long time because our bodies have to heal. I not know if you know this but Hidradenitis Suppurativa is a symptom of PCOS. I truly believe that women with PCOS have autoimmune diseases and food sensitivities and we have to find out what effects our bodies. I have taken foods out of my diet and added foods back and I feel amazing when I eat Paleo.... At the moment I'm not eating Paleo... So honestly I just got a small boil.... Blah.... And I feel sluggish, no energy. I will go back to eating Paleo as soon as the holidays are over. Anyway, I just wanted to give you that info because it helped me so very much!!
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  #21  
Old 12-20-2012, 02:42 PM
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I've also been on the Paleo diet for about 4 months. I feel so much better! I'm gluten and dairy intolerant.


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  #22  
Old 12-21-2012, 08:46 AM
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I will have to try the night shades. I was on the paleo for almost a year and it did nothing. I too have read the same thing about HS and PCOS so I was hoping metformin would help both. It isn't but it is doing wonders for my PCOS. My main fear with that is having kids in a few years. I have wanted kids since I was little and I'm scared PCOS will stop that from happening
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  #23  
Old 12-21-2012, 12:11 PM
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I wouldn't worry about it, some woman with PCOS get pregnant easily. And even if you don't Clomid does wonder for almost all woman with PCOS, as well as metformin. The combination is perfect for getting pregnant. My biggest suggestion is to watch your stress levels. Stress makes PCOS worse. I worked an extremely high stress job and it made the PCOS so bad and the Clomid didn't work. I'm done that job.... For my health... I feel better and going back on clomid to see if it works.im also on metformin but it doesn't work as well for me as I've heard it does for some woman.
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