Does anyone have any experience with laryngeal collapse, trachea collapse and bronchial collapse?
My almost 9 year old girl, Bella, was diagnosed with tracheal collapse in February and the ER doctor gave us prednisone and hydrocodone for her for a week. She had has 3 episodes that I went to the ER with since then. We went to see a internal medicine specialist Wednesday and she did a bronchoscopy and found that she had early laryngeal collapse, moderate to severe tracheal collapse and mild to moderate bronchial collapse.
I have been reading about these for days now and it seems like the aero chamber with flovent works well for the tracheal and bronchial collapse but I haven't seen anything that "works" for the laryngeal collapse. There is a surgery where they tie the left side of the larynx up with 2 sutures so it isn't collapsing and blocking the airway but there isn't really a lot of information all this or the condition in itself.
If anyone has any information on it I would be hugely grateful! I am a mess and she just seems to be worse after the bronchosopy.
I plan on calling the specialist office first thing Monday because she is definitely breathing hard all the time now, not just some times like before.
Again, any info would be appreciated!
Thank you in advance!!