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  #1  
Old 08-02-2013, 09:27 PM
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Default Thrombocytosis

Does anyone have a high platelet count also known as thrombocytosis? My platelet count has been up for the past 2 years and my past physicians always just told me to take a aspirin everyday. It was up again when I went to my family doctor a couple of weeks ago and while I was in the office she told me as long as it wasn't much higher it wasn't anything to worry about but if it got higher she would send me to a hematologist. The next day I got a call from her nurse saying that my platelet count was very high and I was being referred to a hematologist. I had seen her in January and it was high but that was when she just asked if I was taking aspirin.
My appointment with the hematologist is on the 19th.
I figured that one of my medications that I take for my back was just causing it but she said that I am not taking anything that could be causing it.
I am thinking positive and telling myself that my doctor is just being over cautious but some of the things that I have read about it has scared the patooy out of me.

I know we have a wide range of members with a lot of knowledge so I thought I would see if anyone had experienced this before.
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Old 08-02-2013, 09:37 PM
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I had a high platelet count for years. 863. They never determined the cause. It's back down to around 406 to 410. Just barely above normal. Normally if it's just your platelet count that's high, they will run several blood counts over a course of time. If it's extremely high, then they may suggest a bone marrow biopsy. Blood cancers usually cause other markers in your blood counts. Blasts, etc. I'd see the specialist, and try not to worry. Easier said than done, I know. My white cells are now high. They'll peak at 28. They attribute it to pain and inflammation of my back. I'll keep you in my thoughts and prayers. xxxx



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Old 08-02-2013, 09:51 PM
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Quote:
Originally Posted by TLI View Post
I had a high platelet count for years. 863. They never determined the cause. It's back down to around 406 to 410. Just barely above normal. Normally if it's just your platelet count that's high, they will run several blood counts over a course of time. If it's extremely high, then they may suggest a bone marrow biopsy. Blood cancers usually cause other markers in your blood counts. Blasts, etc. I'd see the specialist, and try not to worry. Easier said than done, I know. My white cells are now high. They'll peak at 28. They attribute it to pain and inflammation of my back. I'll keep you in my thoughts and prayers. xxxx
Thank you T! It has been like this for over 2 years so I am trying not to worry too much. Before I moved to Texas my family physician in WV wanted me to see a specialist but then I moved to Texas and didn't keep the appointment.

My family doctor had said if the platelet count wasn't above 1000 it wasn't anything to worry about. She also told me it was silly to go to a hematologist because it was likely they could tell me why but wouldn't be able to do anything about it. I thought that was fine and had forgot about it until the next day when the nurse called to tell me they were giving a referral.

I am hoping it is not anything and just the way my platelet count runs.
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Old 08-02-2013, 10:53 PM
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Amy, I don't have anything to contribute. I want to say don't worry, but we do that automatically! What I question is why the change in the doc's opinion? Maybe guidelines have changed. Kind of frustrating when you try to keep with things in case something is wrong, it would be caught early! That is my biggest pet peeve with doctors. . .when they say, can't find anything wrong. Then later, something comes up!

You will be in my thoughts! Take care and try not to "think" about it!
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Old 08-02-2013, 11:01 PM
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Originally Posted by Angel1210 View Post
Amy, I don't have anything to contribute. I want to say don't worry, but we do that automatically! What I question is why the change in the doc's opinion? Maybe guidelines have changed. Kind of frustrating when you try to keep with things in case something is wrong, it would be caught early! That is my biggest pet peeve with doctors. . .when they say, can't find anything wrong. Then later, something comes up!

You will be in my thoughts! Take care and try not to "think" about it!
Thank you Cindy!
The only thing I can think of why the change in her opinion is perhaps my platelet count she took on my last visit was a lot higher. I also keep thinking it could just be her being over cautious. I told her it had been like that for a couple years at least and at that time she did not seem to worried about it until the next day after they received my blood work back. They were supposed to send me a copy of my lab work results but I have not received it yet.
My gut is telling me it is not anything major but my dad had a massive stroke after laser surgery so anything to do with blood clotting scares me. He had a DNA disorder though and I have already been tested for it. I am the only kid in my family that doesn't have it.
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Old 08-03-2013, 01:36 AM
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So sorry about your dads stroke. I cannot stress enough how important it is to get and document, thoroughly, really thoroughly, family medical history! I did not. I wish I had! My dad at age 77 from cancer. My oldest sister did not want an autopsy. We never knew what type of cancer! He was diagnosed about 3 weeks before he died! In a way it was good because it was fast. That same sister died from breast cancer. As you get older and things start to break down, all that info becomes so much more important! Not trying to scare you! Just how important family history is!

It sounds like she just wants to err on the side of caution, which is a good thing!
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Old 08-03-2013, 01:55 AM
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Originally Posted by Angel1210 View Post
So sorry about your dads stroke. I cannot stress enough how important it is to get and document, thoroughly, really thoroughly, family medical history! I did not. I wish I had! My dad at age 77 from cancer. My oldest sister did not want an autopsy. We never knew what type of cancer! He was diagnosed about 3 weeks before he died! In a way it was good because it was fast. That same sister died from breast cancer. As you get older and things start to break down, all that info becomes so much more important! Not trying to scare you! Just how important family history is!

It sounds like she just wants to err on the side of caution, which is a good thing!
I totally agree! My grandfather died from a stroke as well after a knee replacement (knees are bad things to have surgery on in my family) but they think he probably also had the DNA disorder that my dad had that caused his stroke. They did not know my dad had it until he had passed away and they did an autopsy because he was only 44 years and my mom wanted to know what happened. My aunt almost passed away due to a blood clot but because she had never been tested for the DNA disorder they did not know she had it. The entire family was told to go be tested after that.

I am very sorry about your dad and sister. My grandma passed away due to cancer and it is not an easy thing to watch.
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