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For those who I don't have email address for on my address book here is the lastest update.

I have had a few upsets lately and being ill I haven't had the incentive to post any messages and I was also fed up of bearing bad news.

I was told I wsa to have a line inserted under the skin in my chest called a Groshong Line and until this was done I could not go home. The operation was only done on Thursdays and this was Monday..I went to sleep last night pondering on what today was to bring. Would I spend all day waiting for nothing to happen after all?

I woke up to the usual extreme noise from the nurses at 7am but feeling tired I soon nodded off into a half sleep. Then at approx 8am the nurse came to see if I wanted a wash and my bed made, so I started getting my wash gear together when two men all in blue came up to me to tell me….


WIAT FOR IT……………………………………..

They were from the heart department and they had a cancellation so I was definitely having my operation today.. I was so happy,, I was told I was last on the list but as they only do 4 operations a day it would be early afternoon.

So having had my wash and breakfast I thought to pass the time I’d have a sleep as I was still tired, but heck I just shut my eyes when a porter called my name. I thought ahh Physio.. but nope the porter said he was to take me to the heart dept.

The time there passed so quickly and before I knew it I was on the operation table, I had a local anesthetic so was awake the whole time and yep I did have episodes where it really hurt but I’m a Geordie lass and can take it…

So now I am back on the ward and I have been told some not so good news and here it is..

The operation itself did have a couple of complications but nothing I was aware of and nothing was said earlier so I thought that’s okay.. However while on the heart dept I was given an ECG scan and there is cause for concern. (ECG measures the heart)

The results have come back not good and I now have to wait for someone from the heart dept to come and see me. Likely to have more tests as one concern is that a heart valve does not collapse. It’s probably nothing but because I have to be checked over it does delay getting out of hospital again though hopefully not too long of a delay.

I am just pleased the line is in and now can see the end of the tunnel a bit more clearly.

About time I had good news for you.
 

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I hope you get out of hospital soon, it sounds like its all been a bit of an ordeal. Are you in Northampton General?
 

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I hope this is about it for you and that you will be well on the road to recovery sooner than later, hun...you must miss your boys terribly, too.
 

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Well it's nice to hopefully see a light at the end of the tunnel for sure:) Keep us posted Hun:) Hope you can get out of that old dang hospital soon!
 

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The other night Brian sent me a photo of the boys, Red was half buried fighting a toy but Jake was staring right into the camera.

I burst into tears, luckily it ws night time so it was dark and no one could see me or so I thought. I was so upset and stressed I ended up having a nose bleed, There was blood all over me.

A nurse noticed I wasn't right and came over, let me talk and cleaned me up, I saved the photo but I still can't bring myself to look at it as I get so upset.

Right now I have another worry, my horse Kyle wsn't right and Brian decided to call the vet, teh vet checked him over and ruled out colic but as Kyle is prone to anemia he has taken blood samoples and is gonna test him to which I should get the results tomorrow. Kyle is my old boy who I have had 18 years so when he is off colour I worry.

Yesterday Brian said he was really dominant and bolshy but today he was not interested in his food, is lethergic and even laid down which is something Kyle rarely does. The vet is nto worried but to play save Kyle is being kept in tonight, hting is Spike has to come in as well as he goes mental without Kyle. big softy..
It's times like this I wsh I was well enough to see to my boys myself but I do trust Brian and for him to want to call the vet shows he does care about my boys as well even if he pretends at times not to.

His actual words were "I am concerned about Kyle so I am going to call the vet anyway just to make sure he is okay"

It meant more work for Brian tonight with Hay , water etc..and means more work tomorrow as well as having his normal work to do and help me as well.

I am having pains were the Groshong Line was put in so have been given morphine and the senior nurse has told me to tell him if I am still in pain in half hour. I also have pain in the back of my neck but will wait for the morphine to kick in.

Its been a right roller coater ride these past few months and especially today, as one thing is sorted something else happens but then that is how its been for 3 years lol, still this is the biggest and scariest ride so far.. so much happening and powerless to do anything.

Deme x
 

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You poor thing!! I know you're strong! I'm praying for you!

Have you thought about making a recording or if Brian has a cell phone, he can put it on speaker phone, so you can talk to Kyle? Maybe if Kyle hears your voice and knows you're o.k. & that you'll be home soon, this might perk him up where he won't feel so bad. Kyle might just be worrying about you & wondering where you are all this time.

Stay strong & keep positive!!
 

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Bless your heart! You have been through the ringer for sure. Sending prayers that you will be straightened out soon and out of that dreaded hospital. Also sending prayers for your horse.
 

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Hi Dawn. You really have been through it. So sorry!!

What is the groshong for? Antibiotics? We only send patients home on them if they are going to be on IV infusions of antibiotics, chemo, etc.

Did the talc work on your collapsed lung? We have used it at my hospital, only rarely, but it does seem to work most of the time.

I hope you can go home soon.
 

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Hi Dawn. You really have been through it. So sorry!!

What is the groshong for? Antibiotics? We only send patients home on them if they are going to be on IV infusions of antibiotics, chemo, etc.

Did the talc work on your collapsed lung? We have used it at my hospital, only rarely, but it does seem to work most of the time.

I hope you can go home soon.
I am to be on antibitoics for a while and will be at home (soon I hope) so yes your right the Groshong is for antibiotics via IV.

The talc operation, the first one only worked on half of the lung so a second talc op was carried out and again did not fully work.

They attached a bag to measure how many litres of air was in my lungs and within an hour 500 litres collected which was not what they wanted to see.
So the drain can not come out as they say there is a 90% chance my lung will collapse again.

So not totally sure what they are gonna do when I come out reagrds the drain. They did try attaching a different bag to my side so that I could be more mobile at home rather than have to carry the blue box thing but the bag leaked. Then they told me the bag was not really suitable in the first place. ehh... So why use it... totally baffled me that did. lol

I am at the moment back to using the blue box thing which I have to carry around.

Someone was gonna come to talk to me either today or tomorrow morning so guess it will be tomorrow morning now regards the ECG results.

The results came back with issues and when I asked the surgeon what they were he said he did not know.

It was mentioned that on Monday they would insert something via my groin to check my heart valves. Any idea what this could be? I also wondered why from the groin and not the chest.

I am hoping whatever they decide to do if they do it don't hurt, everything seems to hurt... and not just a simple twinge either.

~~~~~~~~~~~~~~~

Kyle... Brian says Kyle is eating okay and will he will be up early to see how he is tomorrow and put him out.

I need someone to chat with me, record everything and help write a book, if all these things over the last 3 years hadn't happened to me personnally I would never believe so much could happen to one person so consistantly.


I don't get to come on here and post too often as I am often weak, in pain or having things done to me. But I do pop in and read messges more often and it really helps me get through the days.

A lovely messge raises a smile and I need to smile... to many tears give for a soggy bed...

Cheers everyone for being my friend and for all your well wishes for me, Jake, Red and my horses.

Deme x
 

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Dawn, it sounds like they are going to do a heart cath (catheterization). They will sedate you and insert a tube into your groin (femoral artery) and thread it up into your heart and then inject dye to see how your heart is functioning. Then they will take pics (radiographs) as the dye is being pumped out to see what the function is of your heart.

It's a common procedure, we do them all the time. It's not really uncomfortable while it's happening, you will have a local in your groin and you will be given a sedative so you are relaxed and drowsy. Sometimes there is an uncomfortable hot feeling when they dye is injected but it passes quickly.

Afterward you will have to lie flat so that your artery incision/puncture can close up. We use a device that puts a teensy sponge like plug into the puncture. But you will still have to lie still for several hours. After that, you can get up and move around.

I can't believe you still have the chest tube in after all this time!

The heart cath is a great diagnostic tool to see what's going on in your arteries and also your valves. If you have a valve problem, it will show up. Also, they will check your arteries for plaque. It's really the best test we have to show what's going on in your heart.
 

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Discussion Starter #18
everytime I have had an anesthetic and sedation the procedure has still hurt like JIKES...

The only time I was pain free was when my specialist did the anesthetic and sedation for the current drain that is in. She told me if I felt pain then the sedation and anesthetic wasn't done right or enough.

I am hoping that if I do have what you have mentioned that they give enough treatment as I am tiring of being in pain all the time.

My other concern is I can't lie flat due to my lung disease and there is no way I can lie flat for hours.

Why does the procedure need to start from the groin.. and how long does it take.

I am not so worried about the produre itself nor the prospect of more pain but the lying flat for so long does worry me as if I take an attack the coughing is quite severe and I would dread my coughing to cause more complications on treatment I have already had, eg the drain and the line.
 

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Why does the procedure need to start from the groin.. and how long does it take.

I am not so worried about the produre itself nor the prospect of more pain but the lying flat for so long does worry me as if I take an attack the coughing is quite severe and I would dread my coughing to cause more complications on treatment I have already had, eg the drain and the line.
It starts in the groin because that's the best way to see what's going on your heart. The little tube is threaded up into your heart through your femoral artery. In rare cases, I have seen them use the large vessel in the arm, but usually it is the groin.

They can tilt the bed up so it's at an angle, so your head is up but your groin is still straight. Like this: / if that makes sense. Depending on the type of plug they use, you may only have to lie flat/straight for an hour or two. I know it's important for our patients to not disturb the site by bending at the groin (like in a sitting up position) or else you can get bleeding into the groin and a large hematoma (lump) or even an aneurysm (where the vessel gets a leak). Complications are RARE though Dawn. Try not to worry.

The actual procedure from start to finish usually takes about an hour.

I know the doctors and nurses are aware of your limitations and they will work with you - don't worry about it. I know that's easier said than done!! But if it is a heart cath they are planning - it will definitely tell them what they need to know about the status of your heart and your valves. It's a very important diagnostic tool.
 

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Thanks Tracy that is reasuring, the tilt you mentioned would certianly help as I can lie flat to a certain degreee just not totally flat.

Not sure if thi is relevant but since having the line put in I have a lot of pain in the back of my neck.

I have been given arromorph but it hasn't helped, I also get morphine that is given every 12 hrs and I had my last lot at 9pm and it hasn't helped either.

I was thinking to just get through tonight and see how it is in the morning. I mean my body has been battered quite a bit lately and it could be a result of all that.
 
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